THERE IS HOPE:

  ENCEPHALOCELE          AWARENESS                          

We, as parents of a child who was born with an occipital encephalocele, want to  spread a message of hope, compassion and life. We know all too well what it's like to hear the terrifying news that your baby has an encephalocele. We are here to help. We want to create one space where parents can come to get information regarding what an encephalocele is, a list of experts and some support resources.

**PLEASE NOTE that we are NOT doctors, professionals in the medical field, experts in regard to encephaloceles or any medical or legal professions.** We are just parents who want to help give other parents something we didn't have when we were dealing with this difficult diagnosis: Hope. There is life for an encephalocele ("cele") baby. Do not give up. Have faith. Have hope.