HOSPITALS WITH ENCEPHALOCELE EXPERIENCE
Here is a short list of hospitals in the United States that we know are familiar with treating encephaloceles. These facilities are some of the best in the world. This list is based on internet research and our own experiences. We are not doctors, researchers or experts in the field. We are just parents who spent a lot of time researching options. We have personal experience at the Children's Hospital of Philadelphia. That is where we had our son and where he receives services.
CHILDREN'S HOSPITAL OF PHILADELPHIA (CHOP)
CHOP has a long history of providing multidisciplinary care for children with encephaloceles. Treatment of this complex neural tube defect requires the expertise of both neurosurgeons and plastic surgeons to optimize neural function and facial appearance and form. It is important that your child be treated in a center that has experience in the management of these lesions, especially since the condition is so rarely seen in North America.
CHOP’s Craniofacial Program provides coordinated, multidisciplinary care to children with encephaloceles, bringing together the many pediatric specialists needed to provide the best outcomes for your child in one institution.
Reviewed by: Scott P. Bartlett, MD and Jesse Taylor, MD
Date: April 2014
*Craniofacial program | children's hospital of philadelphia. (n.d.). Retrieved from https://www.chop.edu/centers-programs/craniofacial-program
BOSTON CHILDREN'S HOSPITAL
"The largest of its kind in the Northeast, our Craniofacial Program offers specialization in rare and complex disorders such as encephalocele. Our team includes some of the world’s most experienced neurosurgeons, plastic surgeons, oral and maxillofacial (face and jaw) specialists, dentistry professionals, psychologists and social workers—all working together to care for your child.
The Craniofacial Program was an early adopter of 3-D printing to help surgeons plan for especially tricky cases, making operations shorter and safer. Read more on our science blog and watch how 3-D printing recently guided another type of craniofacial operation."
*Cleft and craniofacial center | boston children's hospital. (n.d.). Retrieved from http://www.childrenshospital.org/centers-and-services/programs/a-_-e/cleft-and-craniofacial-center
SEATTLE CHILDREN'S HOSPITAL
Encephalocele at Seattle Children’s:
"Seattle Children’s has the largest team in the region to treat encephalocele. After we carefully evaluate your baby, we tailor a treatment plan to their needs.
Based on where the encephalocele is, babies may have other conditions, like these:
Hydrocephalus
Vision changes
Pituitary problems
Differences with the bones in their skull and face
Seattle Children’s brings together experts from many medical specialties, including Neurosurgery, Craniofacial, Plastic Surgery, Ophthalmology and Endocrinology, to take care of your child.
If your doctor suspects or sees from a prenatal ultrasound that your baby has an encephalocele, our experts can use fetal MRI (magnetic resonance imaging) to get more details about your baby’s condition before birth. We have one of the leading fetal MRI researchers in the country, Dr. Dan Doherty. Pregnant women can come to Seattle Children’s Prenatal Diagnosis and Treatment Program for an evaluation. Our doctors can consult with you about what to expect and what treatment your baby might need after birth."
*Encephalocele. (n.d.). Retrieved from https://www.seattlechildrens.org/conditions/brain-nervous-system-mental-conditions/encephalocele/